4-19-2013: iDASH External Webinar - Deven McGraw

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Coping with, and Taking Advantage of, HIPAA's New Rules Date: Fri Apr 19, 2013 Host: Deven McGraw Center for Democracy & Technology ABSTRACT In January, the U.S. Department of Health and Human Services released final regulations to implement the changes to the HIPAA Privacy and Security Rules mandated by Congress in both the HITECH Act and GINA (Genetic Information Nondiscrimination Act). In this webinar, I will summarize the major provisions of the rule, focusing in particular on...

04-04-2013 - Journal Club - Guergana Savova

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Towards comprehensive syntactic and semantic annotations of the clinical narrative Albright D, Lanfranchi A, Fredriksen A, Styler WF 4th, Warner C, Hwang JD, Choi JD, Dligach D, Nielsen RD, Martin J, Ward W, Palmer M, Savova GK. J Am Med Inform Assoc. 2013 Jan 25. [Epub ahead of print] PMID: 23355458 Guergana Savova, Ph.D Harvard Medical School This project takes a foundational step towards bringing the field of clinical NLP up to par with NLP in the general domain. The corpus...

03-15-2013 External Webinar - Dr. George Alter

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New Tools for Data Discovery and Sharing Confidential Data at ICPSR Dr. George Alter Professor of History Director, Inter-university Consortium for Political and Social Research University of Michigan ABSTRACT Founded in 1962, ICPSR is the world’s largest archive of social science data. This presentation will provide background on ICPSR’s activities with emphasis on recent developments in data discovery and access to confidential data. New search tools are being developed to...

02-15-2013 External Webinar - Dr. Li Xiong

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SHARE: Statistical and Synthetic Health Information Release Under Differential Privacy Dr. Li Xiong Associate Professor Department of Mathematics and Computer Science and the Department of Biomedical Informatics Emory University Abstract: Protecting privacy of human subjects while enabling large-scale analysis of clinical and public health data is a key challenge in health research. In this talk, I will present the SHARE (Statistical Health informAtion RElease) framework for...

Electronic informed consent management system - DEMO

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Electronic informed consent management system demonstrated in July 2012 at the iDASH All Hands meeting as part of the iCONS project.

Visualization and Analysis of Multiple Streams of Time-Coded Data

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ABSTRACT In many fields of observational research, it is increasingly common to collect many types of data about the activity of study participants, including things such as digital video, system logs, and sensor data. I will present ChronoViz, a tool I have developed for annotation, visualization, navigation, and analysis of multiple streams of time-coded data. Researchers using ChronoViz can navigate data in multiple ways, including through the use of interactive paper technology, and...

Network Enabled Research: Not just better or faster but fundamentally different

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ABSTRACT The web, like all network technologies before it from the mobile phone to writing itself, has the potential to enable a qualitative change in our capacity as people, organizations and societies. We are starting to see the first glimmerings of how our research capacity might change with projects like Galaxy Zoo and Polymath but these remain isolated examples. What will it take to exploit the network capacity that the web brings us to enable a step change in the efficiency and...

Welcome to Biomedical Data Sharing Workshop

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Speaker: Brian E. Chapman, Ph.D (UCSD)
UCSD iDASH Biomedical Data Sharing Workshop July, 2012

Stakeholders perspectives in the Biomedical Data Sharing Enterprise

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Speaker: Don Detmer, M.D., MA (Univ. of Virginia)
UCSD iDASH Biomedical Data Sharing Workshop July, 2012

Response to Ethical Issues in Biomedical Data Sharing

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Speaker: Mary Deveraux, Ph.D. (UCSD)
UCSD iDASH Biomedical Data Sharing Workshop July, 2012